Our precious daughter, Amelia, was born on December 14, 2014. She was the only baby born that day at what is normally a very busy hospital. We joke that she liked the spotlight from day one.
Shortly after Amelia was born, our nurse noticed something might be wrong. She called down to the nurse practitioner on duty to come up and do an assessment, but the NP thought our OB should do it. The OB came back into our room and picked Amelia up off me.
When I asked what was going on he said, “Oh, the nurse thinks she might have Downs and wants me to take a look.” We paused while he looked at her for 10 seconds and then said, “She might have it. The pediatrician will have to do an assessment in the morning.” And with that, he left.
Seriously, that’s what happened. It was pretty awful.
So began a week of tests, a stay in the NICU and a lot of questions. We chose to spend the week focused on getting Amelia healthy and home and tried not to worry about the confirmed Down syndrome diagnosis yet. Fast forward to six days later, Saturday morning, December 20.